Welcome to The Tape House Blog. My name is Sheila and my youngest son was diagnosed with tuberous sclerosis complex 15 years ago as an infant.
“Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. However, many people with TSC are living independent, healthy lives and enjoying challenging professions such as doctors, lawyers, educators and researchers. The incidence and severity of the various aspects of TSC can vary widely between individuals.”
Because of tuberous sclerosis complex my son also has: autism, epilepsy, anxiety, depression, OCD, an intellectual disability, and aggression. He had 2 brain surgeries in 2011 and had most of his left temporal lobe removed. And in 2013, he was diagnosed with Type 1 diabetes.
This blog started as a way for me to process my feelings and thoughts. I’ve gained a love of poetry in this journey and look forward to sharing our experiences in a delicate, literary way. I also want to show my son’s artwork with my entries. He sees the world in a way I never will; it just seems natural. Thank you for visiting!