la manie

it’s nothing, it’s everything

it’s the stuff fraying at the edges

it’s the goo left in-between

 

try to outwit it, run and escape it

but it’s clever, it’s faster

go blind when that mania warps shit

 

it’s nothing, it’s everything

the ailment that’s in your brain

leaving us stuck in-between

searching

This week has been a rough one.  I don’t even have a quasi figurative way of expressing myself right now.  The whole situation just sucks!  I wish a miracle would happen to take  away my son’s intense aggression!  I read a passage out of the Bible this morning and it explained my entire sad situation.  This Psalm has been described as the saddest passage in the entire book.  Do you agree?

 

Lord, you are the God who saves me;
    day and night I cry out to you.
May my prayer come before you;
    turn your ear to my cry.

I am overwhelmed with troubles
    and my life draws near to death.
I am counted among those who go down to the pit;
    I am like one without strength.
I am set apart with the dead,
    like the slain who lie in the grave,
whom you remember no more,
    who are cut off from your care.

You have put me in the lowest pit,
    in the darkest depths.
Your wrath lies heavily on me;
    you have overwhelmed me with all your waves.[d]
You have taken from me my closest friends
    and have made me repulsive to them.
I am confined and cannot escape;
    my eyes are dim with grief.

I call to you, Lord, every day;
    I spread out my hands to you.
10 Do you show your wonders to the dead?
    Do their spirits rise up and praise you?
11 Is your love declared in the grave,
    your faithfulness in Destruction[e]?
12 Are your wonders known in the place of darkness,
    or your righteous deeds in the land of oblivion?

13 But I cry to you for help, Lord;
    in the morning my prayer comes before you.
14 Why, Lord, do you reject me
    and hide your face from me?

15 From my youth I have suffered and been close to death;
    I have borne your terrors and am in despair.
16 Your wrath has swept over me;
    your terrors have destroyed me.
17 All day long they surround me like a flood;
    they have completely engulfed me.
18 You have taken from me friend and neighbor—
    darkness is my closest friend.

Psalm 88

 

this too

this too shall pass

I need you to think 

as you look past that jagged piece of glass

sitting on your counter reminding you

of that blood tainted dream 

you dreamt last night 

remember the dread and then relief

hang on to that fleeting feeling of fright 

 

this too shall pass

I need you to think

as you look into

that pool of blue sinking 

stupid girl

I know what you’re thinking 

but turn away

don’t let that horrid image stay 

 

this too shall pass

I need you to think 

when he warps and wraps

his sickness into your brain

makes you turn into ice

when his vapor speaks

breaks you into a thousand pieces

that slide about his pacing feet

 

this too shall pass

I need you to think 

of how much more you’ll take

how much more will you take?

wait till he turns his back 

then scramble your way out 

forget your shoes and move 

don’t look over your shoulder

 

just run, fly

much like that flock of massive crows

with their black and blue feathers

that match your arms

match your soul

depart, feel no pain

as the spiny palms try

to stop you in vain

 

this too shall pass

I need you to think

as you look past your life gone mad

hold back your blinding tears

let the ghostly syllables

play about in your ears

I need you to hear

this too shall pass

Madness

 Does it mean I love you any less,

 if I want to keep the best of you,

 but want to change the rest?    

 

I don’t know why I’m feeling the way I do.  The way I was last night, it wasn’t me, it wasn’t right.  But he started up again; wanting this, wanting that.  Throwing this, throwing that.  He took my phone and jammed it into his wall.  The glass is shattered, I can barely make a call.  I tried to keep him in his room as you were moving his wooden toy toaster and his broom.  Removing scissors, long objects, and most anything that he could turn into a weapon.  We, unfortunately, know that part too well.  I kept him in his room as long as I could, but I let him run out, thinking that it would help calm him.  He said he was calmer anyway.  What a good storyteller he is.  Off to the sitting room he went, to put holes in the walls.  I tried for ten minutes, but I wasn’t able to block them all.  Out he ran, he said his blood sugar felt low – 

Ok, I’ll test you – let’s calm down, let’s go…”

He tried to go into your room – to put holes in the wall…he said. 

My voice got louder, my face burned with confusion, exhaustion –

Please calm down.  Please go to your room and calm down.”  Please, over and over again.

He punched my arms harder.  I grabbed his arms just to stop the pain, and you thought I took it too far. 

Mom, give him space – let’s have space!”  You repeated yourself louder and he felt more rage.  I ignored you, concentrating on your brother, but I saw his wrath boil into a crimson fury.  He was on fire and he kicked four new holes into our walls – big ones too, it was what I didn’t want him to do.  I felt warmth escape my ears – I thought…

Why does it seem nobody can hear?”

I collapsed to the ground and grabbed my head with my trembling hands and I wailed a scream I didn’t know I had.  I became primal for about five seconds.  I lost my sense for a fraction of time, I lost my wit – I witnessed my soul escape and enter again.  My vocal chords instantly felt ripped apart; very fitting, they matched my heart.  Something happened, something clicked.  I’m one step closer to feeling insane.  One step closer to losing my mind.  It’s all so very unfortunate.  

This above incident happened August 10, 2017, and it left me at odds with my youngest daughter for about two days.  I felt decimated – perhaps even betrayed a little.  I got over it – but I guess that’s what mental illness can do.  It can turn loved ones against each other in the swirls of madness, in the twisting of insanity.  Prompt loved ones to turn into frozen statues paralyzed with fear to only thaw out long enough to survive.  That’s what we’re doing now, surviving.

These past two years have been really trying but something about these past few months have been especially sinister.  His punches are harder, the damage is greater, and his thoughts are more tortuous.  Is it the Abilify?  Is it the antidepressant?  Is it too much Abilify?  Does he need a new seizure med?  Who knows anymore.

I remember when a trial of Seroquel turned him into a demonic giant with powers that terrorized us day and night.  Night and day.  Two weeks of pure hell and the games got sicker when I had to increase it.

We need more time to see if it will work,”  the doctors would say.

I would nervously laugh, and think, “I pray we have more time.”  It was just my youngest daughter, about 16 at the time, and I during five days of the roughest part of the med trial. My oldest daughter and husband were on a school trip to Paris.  My Mom, who was staying with us at the time, went back to Missouri to help out my sister and her family.

My daughter and I would wake up to battles and the ritualistic dismantling of our house.  I would stand at his doorway during an event to lessen most of his tornadic activity that could happen to the main part of the house.  But most of his torment landed on various areas of my already bruised body.  I would put on an old winter jacket that my husband used to wear and put on heavy utility gloves, but it offered only a bit of protection.  I became the guard and he became the beast – with foam dripping out of his mouth, and my brain would have to recover from all the horrific words he shouted.

The longest event on one particular bad day lasted a little over an hour.  It was one of the five or six events per day he would have during this Seroquel trial.  My heart raced and I would feel like I ran a marathon after each event.  Between episodes I would put ice packs on my arms and maybe even my face, rest, and pop Motrin like candy.  My daughter would ask if I was okay, but her eyes had already been stained with his violence.  There’d be no turning back.

We’d have a little reprieve where he’d act more “normal” and we’d take a walk or play a game, but we didn’t venture out during this time.  We’d eat our meals between violent events and act as if nothing had ever happened.  He’d say he loved me and I’d respond back with an, “I love you too.”  Most always an event would happen before bedtime and then he’d collapse into bed, praise the Lord.  Once he was asleep, we would assess the damage of the day and clean up accordingly.  Put home decor back on their resting shelves, move end tables, and place remotes back to their original, eager location.

During this time, when he was asleep, the house was unnaturally quiet and appeared unshaken.  My daughter and I would get our pajamas on, fix a snack, and fall on the couch.  After a console session and a good cry, we’d  put on a movie and zone out.  Escape to a different world where we weren’t hurt, bullied, or terrorized.

Around midnight, we’d say goodnight, crawl into our beds, and pray for a better day to be waiting for us.  We’d close our eyes and let the stillness lead us into calm waters.  We would either dream of old ladies whispering hush or bloody mouthed wolves that chased.  There was no in-between.  It was madness.